As it is Christmas dress/ jumper day on Thursday 20th December, we will be raising money for a cause that is close to our hearts here at St Bede’s – ex-pupil Jordan Adams. Please read his
biography below to explain why we are raising money for this charity.

‘My name is Jordan Adams,

I’m a 23-year-old man who was born in Redditch. I grew up living with my two loving parents Glenn & Geraldine, my older sister Kennedy who is now 25 and younger brother Cian who is 18.

I attended Mount Carmel First School, St. Bede’s Middle before finally finishing my lower school education at St. Augustine’s High School. I then moved onto college where I picked up an NVQ in Carpentry & Joinery at Redditch NEW College. After trying several different jobs, I eventually got the opportunity to run a family friends international ‘e-commerce’ business and I have now been doing so for the past 3 and a half years.

Growing up and progressing through the Catholic school system in Redditch was very enjoyable and I particularly excelled in my time at St. Bede’s both academically and through the masses of opportunity at the school in sport and extra-curricular activities. I eventually went on to win the much-acclaimed St. Bede’s Upper School award and the prestigious sports award in year 7 which were very proud moments for me.

Taking the step to high school is never an easy one and my journey was made particularly difficult when my mother Geraldine was diagnosed with Early Onset Dementia (FTD/Picks Disease) midway through 2010. Sadly, my mother’s condition deteriorated over a six-year period before
eventually passing away at the tender age of 52 in March 2016. This was coincided with the
diagnosis of my Auntie with the same Dementia. She also sadly passed away in the early part of 2017. Tragically, Frontotemporal Dementia with Parkinson’s has broadcast itself deeply across my Mother’s side of the family. Effecting many of my mom’s cousins as well as her own mother, aunties and uncles.

As Kennedy and I grew older and wiser, we decided to learn more about the condition that had
engrossed our family’s lives. It was not until learning more that we realized the disease was
hereditary. Thus meaning, Kennedy, Cian and I all had a 50-50 chance of inheriting the mutating MAPT gene that in turn causes the duo of Frontotemporal Dementia and Parkinson’s our family has had to live with.

It was earlier this year when my sister made the relevant in roads to find out whether she had
inherited the gene from our mother. Amazingly, Kennedy received the all clear in May 2018 much to everyone’s sheer relief, as this was a burden of uncertainty and dread we had all carried for some time. With Kennedy receiving a positive result, joint with the fact I met my long-term partner Lucy. I made the decision to have the genetic test myself.

Unfortunately, after several consultations I eventually received the result on 12th September that I had inherited the mutating MAPT gene and I will get FTD/Picks Disease in my younger years just like my Mother and Auntie. However, I have no control or knowledge of when symptoms will start. As it is not a matter of ‘if’ but a matter of ‘when’ this condition starts to impose itself on me. Following my result, I have made it clear that I want to turn my situation into the most positive it can be. I aim to do this by raising awareness through talking about my own experience with
dementia whilst taking part in various medical studies & social experiments including a Channel 4 series set to be aired in March 2019, taking away the stigma surrounding the condition and those living with it. I also aim to do my part in raising money for charities that help fund the search for a cure but also the care & guidance of those already living with Dementia.

Many people would say my diagnosis is like a death sentence however, I like to see it as a license to live. I intend to fill my days with lots of adventures and new experiences, living a much more
fulfilled life as a result. My sister recently set up a campaign via Just Giving to contribute to my bucket list which will help me achieve my dreams…

I hope that I leave a legacy behind to not only inspire those effected by Dementia but Mental Health as a whole’.

 

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